Friday, June 26, 2009
Introducing Caydence Bristol!
Our beautiful daughter Caydence was born just a couple weeks ago on June 10th, 2009. She weighed in at 4 lbs 8.7 oz and was 17 inches long. She wasn't due until July 5th, but decided that she wanted to make her debut a little early.
Back in February, during my 20 week ultrasound we found out that our baby girl has a heart defect - AVSD (Atrioventricular Septal Defect) or AV Canal. Meaning, she has a hole between the upper two chambers of her heart and another between the lower two chambers of her heart. She will require open heart surgery to repair the holes when she is 6 months to a year old. A really good website which explains her defect is: www.pted.org
We also found out that this heart defect is very common in babies with Down Syndrome. Our doctor asked us if we wanted to have an amnio to see whether or not she had it. Josh and I decided that the diagnosis didn't matter to us and that we would love and take care of her either way. So we declined it and decided to wait until she was born to find out.
When she was born the neonatologist told us that she suspected that Caydence had Down Syndrome based on some physical features and a few days later, a test confirmed it. Now most people would think Josh and I would be upset or disappointed at hearing this news. But the truth is, is that it didn't phase us in the least.
As most of you know, our 1st baby Katlyn, was stillborn last February due to a underlying blood clotting disorder that I didn't know I had. Losing a child really puts things in perspective. Although we wish Caydence was 100% healthy, we are just soo incredibly happy that we have a chance to be parents to her and that her heart is able to be repaired.
Right now she is still in the nicu. Here are some milestones over the past couple weeks.
June 12 - She got her IV out and was held by her Mommy and Daddy for the first time.
June 13 - Got her feeding tube out and went off oxygen
June 14 - Had her first tub bath
June 15 - Started taking Lasiks (Dieretic)
June 19 - Started taking Enalapril (Blood Pressure Med)
June 20 - Feeding tube was put back in. Her heart is making her get tired out more easily so she isn't able to finish her bottles.
June 21 - Peed on Mommy and Daddy during a diaper change :)
June 24 - Moved out of her incubator into a crib and is maintaining her body temperature
June 25 - Reached 5 lbs and her umbilical nubby fell off
June 26 - Her blood pressure medication was changed from Enalapril to Captopril which can be adjusted easier.
Right now there is no word on when she will be coming home. But her cardiologist thinks it will probably be closer to her due date. Right now they want to get her stabalized on her medications.
We will be posting daily to keep everyone up to date on how she's doing.