Monday, June 29, 2009

June 29th Update

Caydence started her digoxin last night. I think it is really helping already. She chugged down 20 ml of her milk at her 1:30 feeding (she takes about 38 per feeding). Usually she'd only take about 10 ml and then we'd have to give her the rest in her tube.

Speaking of her tube... Today they wanted us to get more experience putting her tube in. I had done it once before. I was hoping Josh would be there this time, but he had to work late. So I did it... OMG it didn't go as well as last time! This time she was awake and fully aware of what I was doing!

She was screaming and crying her eyes out! I felt so bad :( She hardly ever cries. I got it in eventually, but it wasn't easy! I wanted to cry myself :( Hopefully next time Josh will be able to learn how to do it. I don't want to be the only one that knows how to change it.

The nurses made new name signs for all the babies cribs for the 4th of July. Ain't it cute? They let us keep the old one. I'm gonna frame it and put it in her room here at home.

The cardiologist visited her this morning and seemed to think she looked alright. Nothing much else to report today.


Suz said...

They got them all dressed up for Independence Day! It sounds like you have a great, caring staff there. That has to help going home without her each day. You guys rock!! :)

Anonymous said...

I think mommy is too hard on herself. I think you did great today! I am such a dork I could not even watch. At least you were able to do it. Thanks for keeping me company today, I loved getting to visit Caydence.


Carrie said...

Congratulations on your cute little girl! She is such a doll! We are recovering from the AVSD repair right now, but I think we are about to head home in the next day or so. I'll keep checking to see how your little Caydence is doing.

Monica said...

You are beautiful and such a wonderful mommy!